Akademik Veri Yönetim Sistemi
Istanbul Beykent 4th International Health Sciences Research Days Congress, İstanbul, Türkiye, 22 - 24 Şubat 2024, ss.69, (Özet Bildiri)
Aim: This study was conducted to examine the relationship between parental perceptions of child vulnerability and quality of life (QOL) in children aged 5-7 years diagnosed with cancer. Methods: This descriptive and correlational study examined 117 children aged 5-7 years with cancer and their parents. The information form, the Child Vulnerability Scale, and the Pediatric Quality of Life Inventory (PedsQL), were used for data collection. Data analysis included statistical tests such as t-tests, correlation analysis, and regression analysis. Results: The results indicate that a significant proportion of parents (69.2%) perceive their children as vulnerable, which negatively affects the children's quality of life. The Child Vulnerability Scale showed a negative correlation with several QOL subdimensions, including pain, nausea, procedural anxiety, worry, cognitive problems, and communication. Parental perceptions of vulnerability were associated with lower QOL scores on both the parent and child forms of the PedsQL. Notably, child perceptions of vulnerability explained only 22.2% of the variance in QOL. Conclusions: This study highlights the critical role of parental perceptions in shaping the QOL of children with cancer. Managing and supporting parents' perceptions is essential to improve children's QOL and the effectiveness of healthcare services. This has significant implications for nursing practice, emphasizing the importance of guiding and supporting parents to optimize their children's QOL. Furthermore, this study sheds light on the tendency of parents of chronically ill children to perceive them as vulnerable, providing valuable insights for more sensitive and effective care.